bims-librar Biomed News
on Biomedical librarianship
Issue of 2022–11–06
nine papers selected by
Thomas Krichel, Open Library Society



  1. IEEE Trans Vis Comput Graph. 2022 Nov 04. PP
      A systematic review (SR) is essential with up-to-date research evidence to support clinical decisions and practices. However, the growing literature volume makes it challenging for SR reviewers and clinicians to discover useful information efficiently. Many human-in-the-loop information retrieval approaches (HIR) have been proposed to rank documents semantically similar to users' queries and provide interactive visualizations to facilitate document retrieval. Given that the queries are mainly composed of keywords and keyphrases retrieving documents that are semantically similar to a query does not necessarily respond to the clinician's need. Clinicians still have to review many documents to find the solution. The problem motivates us to develop a visual analytics system, DocFlow, to facilitate information-seeking. One of the features of our DocFlow is accepting natural language questions. The detailed description enables retrieving documents that can answer users' questions. Additionally, clinicians often categorize documents based on their backgrounds and with different purposes (e.g., populations, treatments). Since the criteria are unknown and cannot be pre-defined in advance, existing methods can only achieve categorization by considering the entire information in documents. In contrast, by locating answers in each document, our DocFlow can intelligently categorize documents based on users' questions. The second feature of our DocFlow is a flexible interface where users can arrange a sequence of questions to customize their rules for document retrieval and categorization. The two features of this visual analytics system support a flexible information-seeking process. The case studies and the feedback from domain experts demonstrate the usefulness and effectiveness of our DocFlow.
    DOI:  https://doi.org/10.1109/TVCG.2022.3219762
  2. BMC Public Health. 2022 Nov 01. 22(1): 2001
       BACKGROUND: People increasingly use the Internet to seek health information. However, the overall quality of online health information remains low. This situation is exacerbated by the unprecedented "infodemic", which has had negative consequences for patients. Therefore, it is important to understand how users make judgements about health information by applying different judgement criteria.
    OBJECTIVE: The objective of this study is to determine how patients apply different criteria in their judgement of the quality of online health information during the pandemic. In particular, we investigate whether there is consistency between the likelihood of using a particular judgement criterion and its perceived importance among different groups of users.
    METHODS: A cross-sectional survey was conducted in one of the leading hospitals in a coastal province of China with a population of forty million. Combined-strategy sampling was used to balance the randomness and the practicality of the recruiting process. A total of 1063 patients were recruited for this study. Chi-square and Kruskal-Wallis analyses were used to analyse the survey data.
    RESULTS: In general, patients make quality judgement of health information more frequently based on whether it is familiar, aesthetic, and with expertise. In comparison, they put more weights on whether health information is secure, trustworthy, and with expertise when determining its quality. Criteria that were considered more important were not always those with a higher likelihood of being used. Patients may not use particular criteria, such as familiarity, identification, and readability, more frequently than others even if they consider them to be more important than other do and vice versa. Surprisingly, patients with a primary school degree put more weight on whether health information is comprehensive than those with higher degrees do in determining its quality. However, they are less likely to use this guideline in practice.
    CONCLUSIONS: To the best of our knowledge, this is the first study to investigate the consistency between the likelihood of using certain quality judgement criteria and their perceived importance among patients grouped by different demographic variables and eHealth literacy levels. The findings highlight how to improve online health information services and provide fine-grained customization of information for users.
    Keywords:  Health information; Infodemic; Information quality; Judgement criteria; Social media; eHealth literacy
    DOI:  https://doi.org/10.1186/s12889-022-14418-9
  3. Digit Health. 2022 Jan-Dec;8:8 20552076221133764
       Background: COVID-19 pandemic is reported to exacerbate existing vulnerabilities of marginalized groups, and the lack of self-care can lead to the spread of the virus across society. Therefore, effective responses to the challenges imposed by the health crisis should consider the health information needs of migrant workers.
    Objective: We aimed to explore how migrant low-income workers seek health information and how their health-related information needs were met during a health crisis. We also investigated migrant workers' preferred information sources and types of content with the theoretical concept of health literacy to understand the development of health competencies among migrant workers.
    Methods: We conducted semi-structured interviews with Thai low-income migrant workers. A total of 13 Thai migrant workers participated in the study, among whom five were undocumented. The interviews were audio-taped, transcribed, and analyzed with the thematic analysis approach.
    Results: Our findings indicated that migrant workers' health literacy and health information behavior could be improved through technology when facing a health crisis. We found that participants sought health information proactively to reduce their perceived risks. However, there is still space for design to support the ability to process jargon information and apply local policy, such as providing easy-to-understand, accurate, and timely information. The findings of this study provide some insights for the authority and technological design to respond to migrant workers' health information needs.
    Conclusions: This study acknowledges and understands the needs of vulnerable migrant workers in society. The findings of this study provide insights for the authority and technological design to respond to migrant workers' health information needs. We also outline the areas worth further investigation, such as the communication between information seekers and providers, and the navigation of the healthcare system for migrants in the host country.
    Keywords:  COVID-19; health competence; health crisis; health information seeking; health literacy; low-income worker; migrant worker
    DOI:  https://doi.org/10.1177/20552076221133764
  4. J Gastrointest Cancer. 2022 Nov 03.
       PURPOSE: Neoadjuvant therapy (NT) is increasingly utilized for patients with localized pancreatic ductal adenocarcinoma (PDAC). Patients with cancer have high information needs and the Internet has materialized as a leading source of information for many patients. Nevertheless, little is known about the availability, accessibility, quality, and readability of online information regarding NT for PDAC.
    METHODS: A search of online patient informational materials (PIMs) pertaining to NT for PDAC was conducted using a combination of common search engines and browsers. Two independent researchers evaluated the readability, quality, and availability of unique PIMs from the top 25 websites from each search using validated measures.
    RESULTS: Among the 130 websites retrieved, 46 (35.4%) unique PIMs focused on treatment of PDAC. Only 30 (23%) mentioned NT as a possible treatment option. Downstaging was the rationale for NT mentioned in the majority (90%) of websites. The mean quality and reliability of the 30 PIMs, assessed using the DISCERN instrument, was 3.3 ± 0.7, suggesting moderate quality/reliability. The mean readability score, assessed using the SMOG Grade tool, was 10.96 ± 1.49, which is equivalent to an 11th grade reading level.
    CONCLUSION: The low availability, poor readability, and moderate quality of online informational materials regarding NT for PDAC highlight the need for new patient-centered resources to educate patients and caregivers on an increasingly utilized treatment strategy for localized PDAC.
    Keywords:  Neoadjuvant therapy; Online information; PDAC; Quality; Readability
    DOI:  https://doi.org/10.1007/s12029-022-00879-z
  5. Anesth Pain Med (Seoul). 2022 Oct;17(4): 429-433
       BACKGROUND: YouTube, the largest online video platform, has become increasingly popular as a source of health information to patients. The aim of the study was to assess whether Korean patients were well informed about spinal injection from YouTube.
    METHODS: Search for the keyword "cheog-chu ju-sa" in Korean language was done, and the quality of the 51 videos with the highest number of views was evaluated independently by two pain management doctors.
    RESULTS: The averages of global quality scores evaluated by the two doctors were 3.0 and 3.5 and modified DISCERN (mDISCERN) scores were 2.8 and 3.0, respectively. The Kappa statistic between the two doctors' scores was 0.285 and 0.417.
    CONCLUSIONS: The percentage of low-quality videos with a global quality score of 2 or less is 18-36%, which indicated that these videos might provide inaccurate or misleading medical information to the patient. Pain clinic doctors should be wary of medically misleading information available on online platforms, such as YouTube, and strive to create and distribute professional quality educational materials.
    Keywords:  Health education; Internet; Patient education; Spinal injection; YouTube.
    DOI:  https://doi.org/10.17085/apm.22134
  6. OTO Open. 2022 Oct-Dec;6(4):6(4): 2473974X221133308
       Objective: Assessment of the readability and quality of online health information regarding parathyroidectomy.
    Study Design: Cross-sectional analysis.
    Setting: Websites providing patient-oriented health information regarding parathyroidectomy obtained via the Google search engine.
    Methods: The top 75 Google search results for "parathyroidectomy,""parathyroid surgery," and "parathyroid gland removal" were reviewed. Websites were categorized by website type and country of origin. Readability was assessed by Flesch-Kincaid Grade Level and Simple Measure of Gobbledygook. Website quality was assessed per JAMA benchmark criteria and the DISCERN instrument.
    Results: A total of 74 unique websites were evaluated. The mean readability of the assessed websites exceeded the recommended sixth-grade reading level on the Flesch-Kincaid Grade Level and Simple Measure of Gobbledygook (P < .001). Readability did not vary significantly by website type. Websites originating from the United Kingdom were significantly more readable than those from the United States. The majority of assessed websites were of poor quality (n = 42, 56.8%) on assessment based on the DISCERN instrument. Quality varied significantly by website category on the JAMA benchmark criteria (P < .001) and DISCERN score (P = .049) with commercial websites receiving the highest scores. DISCERN score also varied significantly by country of origin (P = .036) with UK sites receiving highest mean DISCERN scores.
    Conclusion: Online health information regarding parathyroidectomy is largely of poor quality and is poorly readable for many patients. Institutions utilizing well-defined guidelines for development of patient educational resources may provide online health information of greater quality and readability.
    Keywords:  endocrine surgery; health information; internet; online; parathyroidectomy; quality; readability
    DOI:  https://doi.org/10.1177/2473974X221133308
  7. Low Urin Tract Symptoms. 2022 Oct 31.
       OBJECTIVES: In this study, we aimed to analyze scientific quality and content of female urethroplasty videos on YouTube.
    METHODS: We searched YouTube using the "female urethroplasty", "female urethral stricture", and "urethroplasty" keywords on February 22, 2022. The quality and content of videos were analyzed using the Global Quality Score (GQS) and Female Urethroplasty-Specific Checklist Score (FUSCS) which was developed by our clinic. Video analysis was performed by two independent urologists. The relationship between the video characteristics and GQS and FUSCS was examined.
    RESULTS: A total of 38 videos were analyzed. Fourteen (36.8%) videos were uploaded by academic sources such as urology societies and universities/hospitals, while 24 (63.2%) videos were uploaded by urologists. The median GQS was 3 (range, 2-4) and the median FUSCS was 8 (range, 5-9) for all videos. The Cohen's kappa was 0.834 for GQS and 0.899 for FUSCS, indicating a high level of agreement between the observers. The median GQS was 4 (range, 4-5) and the median FUSCS was 9 (range, 8-10) for academic videos, indicating a statistically significantly higher scores than the urologists videos (p = .002 and p < .001, respectively).
    CONCLUSION: Academic videos on female urethroplasty on YouTube have adequate scientific quality and content for both patients and healthcare professionals. The number of videos by academic sources on female urethroplasty should be increased and individuals should be encouraged to search such videos on search engines.
    Keywords:  YouTube; female urethral stricture; female urethroplasty; social media channels
    DOI:  https://doi.org/10.1111/luts.12468
  8. Eur Rev Med Pharmacol Sci. 2022 Oct;pii: 30049. [Epub ahead of print]26(20): 7719-7723
       OBJECTIVE: The production, use, and sharing of information in health-related fields are increasing at an exponential rate in this age. Because they are so common today, social media platforms have a big impact on people's opinions, habits, and decisions. With this study, we aimed at testing the content, reliability, and quality of the videos about CCHF disease published on YouTube™ for patients and healthcare professionals, which people use for obtaining information.
    MATERIALS AND METHODS: The data of this study were obtained by searching on YouTube™ on January 1, 2022, using the keywords "Crimean-Congo hemorrhagic fever". Google Trends was used to identify the most common search terms for Crimean-Congo hemorrhagic fever. Video reliability was evaluated by using the DISCERN tool and Global Quality Scale (GQS) was performed to evaluate video quality.
    RESULTS: After the exclusion criteria, 75 videos were reviewed. Videos for healthcare professionals were more sufficient than videos for patients (p=0.004). DISCERN and GQS scores were higher in sufficient videos than in partially sufficient/insufficient videos (p=0.000 and p=0.000, respectively).
    CONCLUSIONS: As YouTube is an important source of health information about CCHF, there is a need to increase the number of high-quality and reliable content for patients on YouTube™.
    DOI:  https://doi.org/10.26355/eurrev_202210_30049
  9. J Ren Nutr. 2022 Oct 30. pii: S1051-2276(22)00196-0. [Epub ahead of print]
       OBJECTIVE: To describe the quality and health literacy demand of publicly available diet related videos on YouTube for people with Polycystic Kidney Disease (PKD).
    DESIGN AND METHODS: This desk-based content analysed involved a comprehensive search of YouTube using key words relating to the dietary management of people with PKD. The health literacy demand was evaluated using the Patient Education Material Assessment Tool (PEMAT) for audio-visual materials. A PEMAT score of >70% is indicative of videos that are understandable and actionable.
    RESULTS: A total of 15 videos were evaluated (median 1.28 minutes duration (range: 55 seconds to 81 minutes). The majority were produced by reputable sources (such as a PKD related charity (n= 12) or Nephrologist (n= 2). The quality of the videos was high with the majority (14/15) providing evidence-based advice. The understandability and actionability of the videos were considered low (median PEMAT score 67% (IQR: 51.4-81.7) and 66.83 % (IQR: 50-67) respectively.
    CONCLUSION: There has been a small increase in the number of diet related videos for people with PKD in the past five years. The majority provide evidence-based information, which is also a substantial improvement since the last analysis in 2015. Unfortunately, the health literacy demand of these resources remains suboptimal, and future work should be directed to improving the understandability and actionability of videos.
    Keywords:  PKD; YouTube; content analysis; diet; evidence based; health literacy; nutrition
    DOI:  https://doi.org/10.1053/j.jrn.2022.10.006