bims-librar 2023-03-19 papers

bims-librar

Biomed News

on Biomedical librarianship

Issue of 2023‒03‒19
24 papers selected by
Thomas Krichel
Open Library Society

The MCH Library: Leveraging Learning to Leadership.
A suggested data structure for transparent and repeatable reporting of bibliographic searching.
Searching and Navigating UniProt Databases.
Insights from using an outcomes measurement properties search filter and conducting citation searches to locate psychometric articles of tools used to measure context attributes.
Public Librarian Perceptions of Assisting Immigrant Patrons: Results from a Multi-State Survey.
An anti-infodemic virtual center for the Americas.
Evaluating the Alignment and Quality of Microgreens Training Materials Available on the Internet: A Content Analysis.
Assessing the Quality of Online Health Information and Trend Data for Colorectal Malignancies.
Evaluating the Spanish readability of American Society for Metabolic and Bariatric Surgery (ASMBS) Centers of Excellence (COE) websites.
Analysis of the Readability and Accountability of Online Patient Education Materials Related to Glaucoma Diagnosis and Treatment.
Characteristics Assessment of Online YouTube Videos on Radiotherapy for Breast Cancer.
How Reliable Are YouTube Videos for General Surgery Residents Learning?
Are YouTube Videos on the Treatment of Macular Holes Useful for Patients?
Assessment of YouTube Videos about Urethral Stricture and Its Management.
Quality analysis of YouTube videos about thyroid orbitopathy.
YouTube as a Source of Information on Lipedema: Property, Quality, and Reliability Assessment.
YouTube as a Source of Information on Pilonidal Sinus Disease: A Reliability and Quality Analysis.
YouTube as a source of information on sacroiliac joint injection: A reliability and quality analysis.
TikTok as a source of information regarding premature ejaculation: a qualitative assessment.
Mpox (monkeypox) information on TikTok: analysis of quality and audience engagement.
Prevalence, correlates, and sources of women's health information-seeking behaviors in the United States.
Health Information-Seeking Behavior of Latino Caregivers of People Living with Dementia: A Mixed-Methods Study.
Rotator cuff repair: what questions are patients asking online and where are they getting their answers?
Unpacking Inequities in ADHD Diagnosis: Examining Individual-Level Race/Ethnicity and State-Level Online Information-Seeking Patterns.

Matern Child Health J. 2023 Mar 18.

The MCH Library: Leveraging Learning to Leadership.

Sarah K Riehl, Olivia K Pickett, Rochelle Mayer, John Richards.

  A library to support maternal and child health programs has existed in many forms from the founding of the Children's Bureau in 1912 to the current MCH Digital Library. The overarching goal of the library remains to serve the MCH community with accurate, reliable, and timely information and resources. Like the field of MCH, championed into existence by dedicated activists and nurtured by passionate, gifted people over the decades that followed, today's library is the result of the work of an unbroken chain of individuals devoted to its cause and with a vision for its future. The library website is a critical tool for the field where MCH stakeholders can access the work and wisdom of content experts in the field. All materials, whether in print or digital, are vetted, organized, and curated by librarians devoted to providing the field of MCH with the most relevant evidence-based, implementation-focused resources, links, and tools.

Keywords:  Evidence-based public health; Guidelines and standards; Information needs; Library collection development; MCH research; Maternal and child health

DOI:  https://doi.org/10.1007/s10995-023-03636-1
Campbell Syst Rev. 2022 Dec;18(4): e1288

A suggested data structure for transparent and repeatable reporting of bibliographic searching.

Neal R Haddaway, Melissa L Rethlefsen, Melinda Davies, Julie Glanville, Bethany McGowan, Kate Nyhan, Sarah Young.

Academic searching is integral to research activities: (1) searching to retrieve specific information, (2) to expand our knowledge iteratively, (3) and to collate a representative and unbiased selection of the literature. Rigorous searching methods are vital for reliable, repeatable and unbiased searches needed for these second and third forms of searches (exploratory and systematic searching, respectively) that form a core part of evidence syntheses. Despite the broad awareness of the importance of transparency in reporting search activities in evidence syntheses, the importance of searching has been highlighted only recently and has been the explicit focus of reporting guidance (PRISMA-S). Ensuring bibliographic searches are reported in a way that is transparent enough to allow for full repeatability or evaluation is challenging for a number of reasons. Here, we detail these reasons and provide for the first time a standardised data structure for transparent and comprehensive reporting of search histories. This data structure was produced by a group of international experts in informatics and library sciences. We explain how the data structure was produced and describe its components in detail. We also demonstrate its practical applicability in tools designed to support literature review authors and explain how it can help to improve interoperability across tools used to manage literature reviews. We call on the research community and developers of reference and review management tools to embrace the data structure to facilitate adequate reporting of academic searching in an effort to raise the standard of evidence syntheses globally.

DOI: https://doi.org/10.1002/cl2.1288
Curr Protoc. 2023 Mar;3(3): e700

Searching and Navigating UniProt Databases.

UniProt Consortium

  The Universal Protein Resource (UniProt) is a comprehensive resource for protein sequence and annotation data. The UniProt website receives about 800,000 unique visitors per month and is the primary means to access UniProt. It provides 10 searchable datasets and four main tools. The key UniProt datasets are the UniProt Knowledgebase (UniProtKB), the UniProt Reference Clusters (UniRef), the UniProt Archive (UniParc), and protein sets for completely sequenced genomes (Proteomes). Other supporting datasets include information about proteins that is present in UniProtKB protein entries, such as literature citations, taxonomy, and subcellular locations, among others. This article focuses on how to use UniProt datasets. The first basic protocol describes navigation and searching mechanisms for the UniProt datasets, and two additional protocols build on the first protocol to describe advanced search and query building. © 2023 The Authors. Current Protocols published by Wiley Periodicals LLC. Basic Protocol 1: Searching UniProt datasets Basic Protocol 2: Advanced search and query building Basis Protocol 3: Adding parameters using advanced search.

Keywords:  UniProt; database; navigation; protein; search; tutorial

DOI:  https://doi.org/10.1002/cpz1.700
BMC Res Notes. 2023 Mar 11. 16(1): 34

Insights from using an outcomes measurement properties search filter and conducting citation searches to locate psychometric articles of tools used to measure context attributes.

Wilmer J Santos, Alison M Hutchinson, Tamara Rader, Ian D Graham, Vanessa Watkins, Ligyana Korki de Candido, Megan Greenough, Janet E Squires.

  OBJECTIVES: To describe our experience with using a methodological outcomes measurement search filter (precise and sensitive versions of a filter designed to locate articles that report on psychometric properties of measurement tools) and citation searches to locate psychometric articles for tools that can be used to measure context attributes. To compare the precise filter when used alone and with reference list checking to citation searching according to number of records found, precision, and sensitivity.RESULTS: Using the precise filter, we located 130 of 150 (86.6%) psychometric articles related to 22 of 31 (71.0%) tools that potentially measured an attribute of context. In a subset of six tools, the precise filter alone was more precise than searching with the precise filter combined with reference list searching, or citation searching alone. The precise filter combined with reference list checking was the most sensitive search method examined. Overall, we found the precise filter helpful for our project as it decreased record screening time. For non-patient reported outcomes tools, we had less success with locating psychometric articles using the precise filter because some psychometric articles were not indexed in PubMed. More research that systematically evaluates database searching methods is needed to validate our findings.

Keywords:  Context; Filter; Outcomes; Psychometric; Review; Search

DOI:  https://doi.org/10.1186/s13104-023-06294-2
J Community Health. 2023 Mar 15.

Public Librarian Perceptions of Assisting Immigrant Patrons: Results from a Multi-State Survey.

Suzanne Grossman, Carolyn C Cannuscio, Rachel Feuerstein-Simon, Mark Winston, Denise E Agosto, Nancy E Epstein, Ana P Martinez-Donate, Ann C Klassen.

  Public libraries in the United States (U.S.) are important sources of health information. Immigrants comprise a large portion of the U.S. population, and research suggests that public libraries help immigrants adjust to life in a new country. Public libraries help immigrants access information directly related to health and provide programs that have indirect impacts on health outcomes, including learning a new language and forging social ties. The purpose of this paper was to examine perspectives from librarians related to interactions with immigrant patrons and how their library supports them in this role. Public librarians (n = 205) from two selected U.S. states completed an online survey focusing on how comfortable they were in helping immigrants with inquiries related to health and the role of the public library in supporting librarians in this endeavor. Respondents generally reported high levels of comfort interacting with immigrants, although there was limited interaction on potentially sensitive topics (i.e., immigration, health). Library staff perceived that libraries overall were not effective in meeting the needs of immigrant populations and that librarians were infrequently offered professional training related to cultural competency and diversity. The findings echo previous studies that demonstrate the need for professional development to ensure that librarians are aware of library resources available to assist immigrant patrons. Findings from this study suggest opportunities for public health professionals and public librarians to collaborate to ensure the provision of reliable resources, health information, and referrals to community-based services.

Keywords:  Community health services; Health; Immigrant; Public library; Social determinants of health

DOI:  https://doi.org/10.1007/s10900-023-01204-w
Rev Panam Salud Publica. 2023 ;47 e5

An anti-infodemic virtual center for the Americas.

Ian Brooks, Marcelo D'Agostino, Myrna Marti, Kate McDowell, Felipe Mejia, Miguel Betancourt-Cravioto, Lisa Gatzke, Elaine Hicks, Rebecca Kyser, Kevin Leicht, Eliane Pereira Dos Santos, Jessica Jia-Wen Saw, Ailin Tomio, Sebastian Garcia Saiso.

  The Pan American Health Organization/World Health Organization (PAHO/WHO) Anti-Infodemic Virtual Center for the Americas (AIVCA) is a project led by the Department of Evidence and Intelligence for Action in Health, PAHO and the Center for Health Informatics, PAHO/WHO Collaborating Center on Information Systems for Health, at the University of Illinois, with the participation of PAHO staff and consultants across the region. Its goal is to develop a set of tools-pairing AI with human judgment-to help ministries of health and related health institutions respond to infodemics. Public health officials will learn about emerging threats detected by the center and get recommendations on how to respond. The virtual center is structured with three parallel teams: detection, evidence, and response. The detection team will employ a mixture of advanced search queries, machine learning, and other AI techniques to sift through more than 800 million new public social media posts per day to identify emerging infodemic threats in both English and Spanish. The evidence team will use the EasySearch federated search engine backed by AI, PAHO's knowledge management team, and the Librarian Reserve Corps to identify the most relevant authoritative sources. The response team will use a design approach to communicate recommended response strategies based on behavioural science, storytelling, and information design approaches.

Keywords:  Americas; COVID-19; Public Health Informatics; artificial intelligence; communication; social media

DOI:  https://doi.org/10.26633/RPSP.2023.5
J Food Prot. 2023 Jan;pii: S0362-028X(22)00033-3. [Epub ahead of print]86(1): 100021

Evaluating the Alignment and Quality of Microgreens Training Materials Available on the Internet: A Content Analysis.

Supun Chathuranga Nabadawa Hewage, Anuradi Makawita, Sahaana Chandran, Kristen E Gibson, Angela M Fraser.

  Interest in microgreens, young, edible seedlings of a variety of vegetables, spices, and herbs, is growing worldwide. A recent national survey of the U.S. microgreen industry reported 48% of 176 growers learned to grow microgreens by viewing websites and videos on the internet. However, it is unknown if the content related to growing microgreens is aligned with regulations and clearly presented. The aim of this research was to conduct a content analysis to determine alignment with the Food Safety and Modernization Act Produce Safety Rule (PSR)and the presentation quality of existing microgreen training materials available on the internet. Microgreen training materials were collected using two search engines - Google and YouTube. A deductive approach was used to inform the development of three coding manuals to evaluate the training materials meeting the eligibility criteria. One was used to determine the alignment of the content and was based on the PSR. The other two manuals were used to determine the presentation quality of Google and YouTube training materials according to CDC's Quality E-learning Checklist. A total of 223 training materials (86 Google and 137 YouTube), which fulfilled the inclusion criteria, were selected for the analysis. The results of the alignment with the PSR revealed that both sources minimally covered food safety principles with several areas minimally or not addressing specific information (e.g., water testing, worker training, environmental monitoring, and record keeping). In addition, some food safety information was unclear or presented conflicting information (e.g., requirement of washing microgreens, cleaning and sanitization methods, seed treatment methods, and waste management). The Google and YouTube quality scoring systems resulted in a mean quality score of 15.81 and 22 of a maximum score of 28, respectively. These findings indicate the quality and alignment with the PSR of microgreen training materials need to be improved.

Keywords:  Alignment with the Produce Safety Rule; Food Safety; Microgreens; Web-based Materials

DOI:  https://doi.org/10.1016/j.jfp.2022.100021
J Surg Res. 2023 03;pii: S0022-4804(22)00687-4. [Epub ahead of print]283 923-928

Assessing the Quality of Online Health Information and Trend Data for Colorectal Malignancies.

Catherine C Beauharnais, Tess Aulet, Jetsen Rodriguez-Silva, John Konen, Paul R Sturrock, Karim Alavi, Justin A Maykel, Jennifer S Davids.

  INTRODUCTION: Patients often refer to the internet to learn about different health conditions. This study aims to assess the landscape of online health information on malignant colorectal conditions, focusing on the popularity, quantity, and quality of internet resources pertaining to these conditions. This information can be used as a guide for surgeons to supplement patient information at the time of surgical evaluation and to help design optimal online health information.METHODS: The terms "colon cancer," "rectal cancer," "anal cancer," and "colorectal cancer" were searched using the Google search engine. The number of search results or "hits" obtained per search term was recorded and the first 50 websites for each search term were reviewed. Included websites did not have a password requirement, were in English, and were free. Quality assessments were performed using the DISCERN instrument, and mean DISCERN scores were compared using analysis of variance. The popularity of each search term was determined using Google Trends, which generates a relative search volume score.
RESULTS: A total of 431 million hits were obtained for the term "colon cancer," 72.5 million for "rectal cancer," 244 million for "anal cancer," and 194 million for "colorectal cancer." Mean DISCERN scores for reviewed websites ranged between 39.7 and 40.6, and were thus within the "fair" category. There were no significant differences in mean DISCERN scores across search terms (P = 0.5). Colon cancer had the highest relative search volume score (61.8), followed by colorectal cancer (43.4/100), rectal cancer (42.5/100), and anal cancer (41.7/100).
CONCLUSIONS: Although there is a large amount of online information on malignant colorectal conditions, the quality of the available information is inadequate. Clinician guidance to resources aimed at higher quality from guidance of the DISCERN tool may be of value for patient education.

Keywords:  Colorectal malignancies; Health information; Internet content

DOI:  https://doi.org/10.1016/j.jss.2022.10.055
Surg Endosc. 2023 Mar 13.

Evaluating the Spanish readability of American Society for Metabolic and Bariatric Surgery (ASMBS) Centers of Excellence (COE) websites.

Theo Sher, Abdul-Rahman Diab, Rahul Mhaskar, Salvatore Docimo, Joseph Sujka, Christopher DuCoin.

  BACKGROUND: Healthcare disparities continue to be an ongoing struggle in Bariatrics. Limited availability of Spanish online material may be a correctible barrier for accessibility to Hispanic patients. We sought to evaluate accredited Bariatric Centers of Excellence (COE) for Spanish readability via their websites to determine accessibility for Spanish speakers.METHODS: This was an internet research study. 103 COE accredited by American Society for Metabolic and Bariatric Surgery (ASMBS) and the American College of Surgeons (ACS) were evaluated and assigned one of five Spanish Visibility Categories. The United States was divided into 4 regions. Regional Spanish visibility was calculated by dividing each category count by the number of institutions in each region. County Spanish-speaking populations were obtained from the US Census Bureau's 2009-2013 American Community Survey. Differences in their distributions across the Spanish Visibility Categories were investigated using the Mann-Whitney U test.
RESULTS: 25% of websites were translatable to Spanish, and a regional discrepancy was found with 61% translatable in the West, 19% in Northeast, 19% in Midwest, and 15% in South. Median Spanish-speaking population was higher in counties where websites were translatable to Spanish than where websites were not translatable.
CONCLUSION: Healthcare disparities in Bariatrics continue to be an ongoing struggle. We suggest that Spanish readability for ASMBS ACS COE websites should be improved regardless of geographic differences in Spanish-speaking populations. We believe it would be valuable for these websites to have standards for readability of Spanish and other languages.

Keywords:  ACS; ASMBS; American College of Surgeons; American Society for Metabolic and Bariatric Surgery; Bariatric surgery; Spanish website readability

DOI:  https://doi.org/10.1007/s00464-023-09978-9
Clin Ophthalmol. 2023 ;17 779-788

Analysis of the Readability and Accountability of Online Patient Education Materials Related to Glaucoma Diagnosis and Treatment.

Samuel A Cohen, Ann Caroline Fisher, Suzann Pershing.

  Purpose: To assess the readability and accountability of online patient education materials related to glaucoma diagnosis and treatment.Methods: We conducted a Google search for 10 search terms related to glaucoma diagnosis and 10 search terms related to glaucoma treatment. For each search term, the first 10 patient education websites populated after Google search were assessed for readability and accountability. Readability was assessed using five validated measures: Flesch Reading Ease (FRE), Gunning Fog Index (GFI), Flesch-Kincaid Grade Level (FKGL), Simple Measure of Gobbledygook (SMOG), and New Dale-Chall (NDC). Accountability was assessed using the Journal of the American Medical Association (JAMA) benchmarks. The source of information for each article analyzed was recorded.
Results: Of the 200 total websites analyzed, only 11% were written at or below the recommended 6th grade reading level. The average FRE and grade level for 100 glaucoma diagnosis-related articles were 42.02 ± 1.08 and 10.53 ± 1.30, respectively. The average FRE and grade level for 100 glaucoma treatment-related articles were 43.86 ± 1.01 and 11.29 ± 1.54, respectively. Crowdsourced articles were written at the highest average grade level (12.32 ± 0.78), followed by articles written by private practice/independent users (11.22 ± 1.74), national organizations (10.92 ± 1.24), and educational institutions (10.33 ± 1.35). Websites averaged 1.12 ± 1.15 of 4 JAMA accountability metrics.
Conclusion: Despite wide variation in the readability and accountability of online patient education materials related to glaucoma diagnosis and treatment, patient education materials are consistently written at levels above the recommended reading level and often lack accountability. Articles from educational institutions and national organizations were often written at lower reading levels but are less frequently encountered after Google search. There is a need for accurate and understandable online information that glaucoma patients can use to inform decisions about their eye health.

Keywords:  accountability; diagnosis; glaucoma; readability; treatment

DOI:  https://doi.org/10.2147/OPTH.S401492
Clin Breast Cancer. 2023 Feb 24. pii: S1526-8209(23)00041-1. [Epub ahead of print]

Characteristics Assessment of Online YouTube Videos on Radiotherapy for Breast Cancer.

Brandon S Chai, Paris-Ann Ingledew.

  BACKGROUND: Radiotherapy (RT) is an important component of breast cancer management but is underutilized due to barriers such as the lack of proper education. YouTube is commonly used for obtaining health information, yet the quality of information has been a previous concern. This study systematically evaluates the characteristics of educational YouTube videos on RT for breast cancer.MATERIALS AND METHODS: A total of 200 YouTube videos were identified by recording the top 50 videos of 4 searches. Duplicates were removed, videos were rank ordered and screened against pre-determined inclusion criteria, then the first 50 videos were reviewed using a video assessment tool. Two independent reviewers were used. Positively skewed distributions were observed for most general parameters including views, likes, length and View Ratio.
RESULTS: The USA (66%) or UK (20%) were the most common locations of publication. Publishers were frequently affiliated with health care facilities (48%) or non-profits (30%). The interview using a physician (68%) or patient (26%) was the most common media type, and B-roll footage with narration (48%) was the second most common. Most videos were targeted towards patients (96%), had comments (56%) and subtitles available (96%). The most common themes identified were Explaining RT (54%), Acute Side Effects (40%) and Patient Care Experience (32%).
CONCLUSION: This review is useful to inform the future development of video resources for health education in this topic. Though parameters were variable and inconsistently followed best practice guidelines, YouTube remains as a potentially important tool for the dissemination of health information.

Keywords:  Guidelines; Medical Education; Online Health Information; Patient Education; Social Media

DOI:  https://doi.org/10.1016/j.clbc.2023.02.011
Cureus. 2023 Feb;15(2): e34718

How Reliable Are YouTube Videos for General Surgery Residents Learning?

Tarun Gupta, Tariq H Haidery, Ripudaman Sharma, Sandeep Sharma, Arvind Kumar.

  Introduction YouTube is one of the top-searched online video streaming platforms. However, the content of YouTube may not match the standards required for clinical skills learning. Therefore, we investigated the quality of top-viewed YouTube videos related to three basic surgical procedures that need to be performed by general surgery residents in their first year of training in our institute. Methods We searched YouTube for the top 10 viewed demonstration videos related to ultrasound-guided abscess drainage, chest tube insertion, and central line insertion. For the eligible videos, we calculated the likes ratio, view ratio, and video power index. The videos' quality was assessed using LAParoscopic surgery Video Educational GuidelineS (LAP-VEGaS) scores. The videos were categorized into high-quality (LAP-VEGaS score ≥ 11) and low-quality videos (LAP-VEGaS score < 11). The different descriptive (view counts, duration, and likes-dislikes) and calculated parameters stated above were compared between the two video quality-based groups. Results The selected videos were uploaded between July 2008 and March 2022. Their mean view counts were 460391.13±373760.19. Their mean video duration was 8.12±4.26 minutes. Their mean likes and dislikes were 2578.38±2977.43 and 144.10±129.80, respectively. The mean like ratio and the mean view ratio were 93.42±13.53 and 317.76±827.79, respectively. The mean video power index was 310.67±827.96. The mean LAP-VEGaS scores for ultrasound-guided abscess drainage, chest tube insertion, and central line insertion-related videos were 6.80, 11.10, and 11.20, respectively. The numbers of likes and dislikes were significantly higher for high-quality videos. Conversely, the view counts, the view ratio, and the video power index were significantly lower for high-quality videos. Conclusion Top-viewed videos related to general surgery procedural demonstrations are of low quality. The video view counts, popularity, and likes-dislikes are highly unreliable indicators of surgical video's usefulness. There is a need for regulatory mechanisms to screen the YouTube content suitable for general surgery residents learning. The residents should therefore be cautious while making inferences based on YouTube videos.

Keywords:  general surgery; learning; medical education; videos; youtube

DOI:  https://doi.org/10.7759/cureus.34718
Cureus. 2023 Feb;15(2): e34767

Are YouTube Videos on the Treatment of Macular Holes Useful for Patients?

Senol Sabanci, Muhammet Kazim Erol, Birumut Gedik, Lütfiye Yaprak, Elcin Suren.

  Objective In this study, we aimed to assess the effectiveness and quality of the YouTube videos for patients regarding the treatment of macular holes. Materials and methods The quality and effectiveness of the videos on macular hole treatment on YouTube were evaluated using the DISCERN, global quality score (GQS), Journal of the American Medical Association (JAMA), and usefulness index scoring systems. Results The median DISCERN score of 100 videos included in the study was 18 (range: 15-73), the median JAMA score was 3 (range: 0-4), the median global quality score was 1 (range: 1-5), and the median usefulness index score was 1 (range: 0-5). The JAMA scores of the videos uploaded by non-clinicians were found to be significantly lower than those of the videos uploaded by clinicians (p<0.001). However, the daily viewing rate and the number of comments and likes for the videos uploaded by non-clinicians were found to be significantly higher than those for the videos uploaded by clinicians (p<0.003). Conclusion Based on our findings, while all of the beneficial macular hole videos on YouTube were published by clinicians, the majority of them are not really helpful to patients.

Keywords:  discern; jama; macular hole; video; youtube

DOI:  https://doi.org/10.7759/cureus.34767
Aktuelle Urol. 2023 Mar 14.

Assessment of YouTube Videos about Urethral Stricture and Its Management.

Emre Tokuc, Ridvan Kayar, Ilker Artuk, Senem Koc, Ramazan Topaktas, Mehmet Akyuz, Huseyin Kanberoglu, Metin İshak Öztürk.

PURPOSE: To evaluate the reliability, transparency, usability and technical quality of videos about urethral stricture and its management in the most common video-sharing website "YouTube".METHODS: We performed a video search on YouTube using the keywords "Urethral Stricture", "Internal Urethrotomy" and "Urethroplasty". After excluding the videos that did not meet the inclusion criteria, demographic data of each video was recorded and assessed with the validated DISCERN questionnaire, the Journal of the American Medical Association Benchmark Score (JAMAs) and the Global Quality Score (GQS). Additionally, the Urethral Stricture Video Score was developed by two experienced surgeons to assess the technical aspects. Videos were also compared with a view to their source of upload.
RESULTS: A total of 177 videos were analysed. Videos from "University" and "Other" had a significantly higher view ratio and video power index (VPI) than the rest (all p<0.05). For all mentioned scores, even though the video sources of "Society" and "University" had significantly higher scores than the rest (all p<0.05), all scores remained at a low to moderate level at each group.
CONCLUSION: Even though universities, societies and organisations tend to upload better videos about the management of urethral stricture in terms of general quality, reliability, transparency and technical aspects, the online visual content about urethral stricture and its management needs to be improved in order to provide more reliable and qualified information for both clinicians and patients.

DOI: https://doi.org/10.1055/a-2030-3966
Int Ophthalmol. 2023 Mar 17.

Quality analysis of YouTube videos about thyroid orbitopathy.

Hatice Deniz İlhan, Aslı Çetinkaya Yaprak, Çisil Erkan Pota.

  PURPOSE: To evaluate the quality and reliability of YouTube videos about Thyroid Orbitopathy.METHODS: A YouTube search was performed using the keyword 'Graves eye disease', 'thyroid eye disease', 'thyroid orbitopathy', 'thyroid ophtalmopathy' in the search bar of YouTube. The first 50 videos were analyzed for each keywords, and the first 100 videos that came out were included in the study. The numbers of views, likes, dislikes, comments, daily viewing rate (number of views per day), uploaded source, country of origin, video type (patient experience, scholarly information), and described treatment technique were evaluated for all videos. They were also evaluated regarding their DISCERN, Journal of the American Medical Association (JAMA), global quality score (GQS) and usefulness score by two independent ophthalmologists.
RESULTS: Of the top 100 videos, 94 videos met the criteria. The mean DISCERN, JAMA, GQS and usefulness score were 55.27 ± 16.57, 3.04 ± 0.64, 3.44 ± 0.93 and 3.23 ± 1.1. If we look at the upload source 53 (56.4%) videos were uploaded by physicians, 30 (31.9%) videos by institutions/private health institutions, 7 (7.4%) videos by health channels, 4 (4.3%) videos by patients. All scoring systems showed a statistically significant and strong positive correlation with each other (p < 0.001). A statistically significant positive correlation between viewing rate, likes and comments was observed. As the duration of the video increased, a significant increase in the scores in other scores was observed.
CONCLUSION: We observed that the tests we used in the scoring were correlated with each other. Most of the thyroid orbitopathy videos on YouTube were of good quality. Ophthalmologists should guide their patients who want to get information on YouTube to watch videos uploaded by health care professionals.

Keywords:  DISCERN score; Global quality score; Graves disease; Journal of the American Medical Association score; Thyroid orbitopathy; YouTube

DOI:  https://doi.org/10.1007/s10792-023-02686-2
Lymphat Res Biol. 2023 Mar 16.

YouTube as a Source of Information on Lipedema: Property, Quality, and Reliability Assessment.

Elif Esen Özdemir, Pinar Borman, Gül Mete Civelek, Mümtaz Mutlu Umaroğlu.

  Background/Aim: YouTube provides information on several health-conditions including lipedema. The aim of this study was to investigate the properties, quality, and quantity of YouTube videos on lipedema. Methods: We explored YouTube using the key word lipedema and the initial top 50 videos were included to review. The properties comprising informers, target, and domains of videos covering number of views, likes, dislikes, duration, viewing rate (VR), and video power index (VPI) were recorded. A modified DISCERN tool and global quality scale (GQS) were used to assess the reliability and quality of videos, respectively. Results: The top 50 videos had a mean of 35,805 views, 282 likes, 12 dislikes, and 30 comments. The mean VPI (96.4) and VR (63.8%) were high. The videos were generally uploaded by health professionals for patient/public and health professional targets with the same ratio (50%). The majority of video contents was related to general information (68%) followed by surgical treatment (62%). Only a small ratio of their content (22%) was about nonsurgical management. The reliability and quality of the videos were intermediate to low. The median DISCERN and GQS scores were higher in the videos uploaded by health professional group compared with nonhealth professionals, but the number of views, VPI, and VR were similar between the groups with regard to the source. Conclusion: YouTube videos on lipedema are mostly provided by health professionals targeting both public/patients and health care providers but the content is limited and the quality and reliability of them were low to intermediate. Therefore, the lipedema specialists are suggested to work together to create up-to-date, high-quality, accessible online educational content to meet the needs of both patients/public and the health professionals. In addition, control mechanisms and careful peer reviewing of the videos informed by nonhealth professionals are warranted to avoid misleading information.

Keywords:  YouTube; information source; lipedema; quality; reliability

DOI:  https://doi.org/10.1089/lrb.2022.0028
Cureus. 2023 Feb;15(2): e34792

YouTube as a Source of Information on Pilonidal Sinus Disease: A Reliability and Quality Analysis.

Kayhan Ozdemir, Ali Muhtaroğlu.

  Aim This study aimed to assess the quality and reliability of the information in YouTube videos regarding pilonidal sinus disease (PSD). Methods A total of 100 most-viewed videos on PSD were included in the analysis by two general surgeons. Video duration and content, date of upload, qualification of the video uploaders, and number of daily and total view, like, and comment counts were analyzed. We grouped the videos as those uploaded by healthcare professionals and non-professionals. The quality of the video contents was assessed with the Global Quality Scale (GQS) and the reliability of the video content with the DISCERN scoring system. Results Eighty-five (85%) videos were uploaded by professionals and 15 (15%) videos by laypersons. The average DISCERN score of the reviewed video contents was 3.18 ± 1.23, and the average GQS score was 3.39 ± 1.24. In the overall subjective evaluation, the mean DISCERN value was found as 4.01 ± 1.24 and the mean GQS value as 4.25 ± 1.25 in the useful videos. The mean DISCERN value was found as 2.32 ± 1.22 and the mean GQS value as 2.48 ± 1.25 in the misleading videos. Conclusion Our results showed that most of the YouTube videos on PSD were loaded by healthcare professionals. However, the mean quality and reliability scores were lower in videos uploaded by laypersons. Given the prevalence of PSD, physicians should be promoted for uploading accurate and professional video contents to direct patients to the right solutions for their problems.

Keywords:  information; internet; pilonidal sinus; quality; reliability; video; youtube

DOI:  https://doi.org/10.7759/cureus.34792
Medicine (Baltimore). 2023 Mar 17. 102(11): e33207

YouTube as a source of information on sacroiliac joint injection: A reliability and quality analysis.

Ekim Can Ozturk, Habip Yilmaz, Rekib Sacaklidir, Savas Sencan, Osman Hakan Gunduz.

Sacroiliac joint (SIJ) injection is recommended for both diagnosis and relief of SIJ pain. YouTube has become a widely used source for health professionals and patients to obtain information about various procedures but the quality of YouTube videos including medical content is questionable. Therefore, the aim of this study is to evaluate the quality of SIJ injection videos on YouTube. This cross-sectional study was conducted through March 2022 by searching the phrase "sacroiliac joint injection" on YouTube. After resetting search history top 100 videos were screened. Duration of videos, number of views, number of likes, number of comments, view ratio (number of views/d), time passed since upload date, guide used for injection, and source of videos were recorded. The DISCERN and the Global Quality Scale were used to assess the quality and reliability of the videos. Of the 100 videos screened 42 videos met the inclusion criteria. The videos (73.8%) were predominantly uploaded by physicians. Most frequently used guide for injections was ultrasound with 45.4%. According to the DISCERN classification, 35.7% of the videos were "very poor," 30.9% were "poor," 21.4% were "fair," 7.1% were "good" and 4.7% were "excellent." Physicians and patients should be aware of that many of the videos about SIJ injections are categorized as "poor" or "very poor," which means they may mislead trainees, resulting in inadequate treatments.

DOI: https://doi.org/10.1097/MD.0000000000033207
Sex Med. 2023 Apr;11(2): qfac020

TikTok as a source of information regarding premature ejaculation: a qualitative assessment.

Ari Bernstein, Michael Zhu, Justin Loloi, Mustufa Babar, Nick Winokur, Matthew Wysocki, Seth Cohen.

  Background: Patients are increasingly looking to social media platforms for medical information.Aim: In this study we aimed to evaluate the quality of information regarding premature ejaculation (PE) on TikTok.
Methods: The term "premature ejaculation" was searched on TikTok on a single day in May 2022. Videos were sorted by 3 reviewers as reliable or unreliable based on the accuracy of video content. Relevant user metrics were collected for each video, including the numbers of likes, shares, and followers, and the video length, source of upload, and speaker type. The quality of information was objectified with 2 validated tools, with mean scores obtained from the 3 reviewers, the Patient Education Materials Assessment Tool (PEMAT) and the 5-point modified DISCERN instrument.
Outcomes: Outcomes were video reliability categorization, video and user metrics as described above, and video quality as quantified by PEMAT and DISCERN scores.
Results: Eight videos were categorized as reliable and 32 videos were categorized as unreliable. The mean number of "likes" per video was higher in the reliable than in the unreliable group (1238 vs 126, P < .018). Accounts posting reliable videos had higher mean numbers of followers than those posting unreliable videos (55 050 vs 12 042, P = .025). The majority of unreliable videos (75%) vs reliable videos (12.5%) were posted by self-identified patients or individual users, whereas 62.5% of reliable videos vs versus 6.3% of unreliable videos were posted by individual physicians or physician groups. Few videos overall mentioned PE definition, indications for PE treatment, types of treatment, or value of psychological intervention (12.5%, 15%, 22.5%, and 5.0% of videos, respectively). Video length and number of shares did not differ between groups. Reliable videos had higher PEMAT (73.0 vs 45.1, P < .001) and DISCERN (2.7 vs 0, P < .001.) scores.
Clinical implications: There exists a critical need for enhanced quality of medical information on social media platforms in hopes of encouraging patients with impaired sexual function to seek appropriate medical care.
Strength and limitations: Strengths of this study include the objective use of validated quality assessment tools and a focus on TikTok as an emerging social media platform. Limitations include large numbers of excluded videos.
Conclusion: The quality of available information regarding PE on TikTok is low, with a significant percentage of videos on this topic fraught with inaccuracies. Given TikTok's prominence as a social media platform primarily geared toward younger audiences, we emphasize the need for improvement in the quality of information available regarding PE and its management.

Keywords:  andrology; disorders of ejaculation; premature ejaculation; sexual medicine

DOI:  https://doi.org/10.1093/sexmed/qfac020
BMJ Glob Health. 2023 Mar;pii: e011138. [Epub ahead of print]8(3):

Mpox (monkeypox) information on TikTok: analysis of quality and audience engagement.

Ao Shi, Joe El Haddad, Peng Cai, Shijie Song, Yuan Jia Wang, Qi Liu, Pengyang Li.

  BACKGROUND: Online information on mpox (monkeypox) is not well studied. We have analysed the video content, information quality, and audience engagement of mpox-related videos on TikTok.METHODS: Using a hashtag-based searching strategy, we identified 2462 mpox-related videos on TikTok from 1 January to 11 August 2022; 85 were included after exclusion criteria screening. Videos were evaluated for content on features and treatment of mpox. Video and information quality was assessed using the DISCERN instrument and the Journal of the American Medical Association (JAMA) criteria. We recorded video source, evaluation scores, and viewer engagement metrics. The Kruskal-Wallis test was used for statistical analysis and multiple linear regression for factor-association studies.
RESULTS: Of the 85 videos, two assessed all content topics and highlighted 33% of all content items in clinical guidelines. The overall average score for the videos was 39.56 of 80 on the DISCERN instrument and 1.93 of 4 on the JAMA criteria. No video met all JAMA criteria. Subgroup analysis based on author identity suggested the variance in video scores by source (p<0.05 for all). Overall scores were higher for videos produced by doctors and science communicators than for those made by institutional users, nurses, and the general public. Multiple linear regression analysis showed that having people in the video (69.20, p=0.0001) and including information on treatment choices (1.15, p=0.045) were significant, independent determinants of audience engagement.
CONCLUSION: Public-directed TikTok videos on mpox frequently provide incomplete, inaccurate information, highlighting the potential risks of using TikTok as a health information source.

Keywords:  Monkey Pox; health education and promotion; public health

DOI:  https://doi.org/10.1136/bmjgh-2022-011138
Patient Educ Couns. 2023 Mar 07. pii: S0738-3991(23)00083-6. [Epub ahead of print]111 107703

Prevalence, correlates, and sources of women's health information-seeking behaviors in the United States.

Kobi V Ajayi, Sara Flores, Qiping Fan, Folakemi Ezenwanne, Whitney Garney, Elizabeth Wachira.

  OBJECTIVE: To investigate the prevalence, correlates, and sources of women's health information-seeking behaviors in the United States using the Andersen Behavioral Model.METHODS: The 2012-2019 Health Information National Trends Survey data were used to analyze how and where women seek health theoretically. Weighted prevalence, descriptive analysis, and separate multivariable logistic regression models were computed to test the argument.
RESULTS: The overall prevalence of seeking health information from any source was (83%, 95% CI: 0.82-0.84). Between 2012 and 2019, the analysis revealed a downward trend in health information seeking from any source (85.2-82.4%), health care provider (19.0-14.8%), family/friends (10.4-6.6%), and traditional channels (5.4-4.8%). Interestingly, there was an increase in Internet usage from 65.4% to 73.8%.
CONCLUSIONS: We found statistically significant relationships between the predisposing, enabling, and need factors of the Andersen Behavioral Model. Specifically, age, race/ethnicity, income levels, educational status, perceived health status, having a regular provider, and smoking status predicted women's health information-seeking behaviors.
PRACTICE IMPLICATIONS: Our study concludes that several factors influence health information-seeking behaviors, and disparities exist in the channels through which women seek care. The implications for health communication strategies, practitioners, and policymakers are also discussed.

Keywords:  Access to care; Health care seeking behaviors; Health communication; Internet; Patient-provider communication; Women

DOI:  https://doi.org/10.1016/j.pec.2023.107703
J Appl Gerontol. 2023 Mar 18. 7334648231163430

Health Information-Seeking Behavior of Latino Caregivers of People Living with Dementia: A Mixed-Methods Study.

Magaly Ramirez, Sofia De Anda, Haomiao Jin, Joseph R Herrera, Shinyi Wu.

  This mixed-methods study examined the health information-seeking behavior of Latino caregivers of people living with dementia. A structured survey and semi-structured interviews were conducted with 21 Latino caregivers in Los Angeles, California. For triangulation, semi-structured interviews were also conducted with six healthcare and social service providers. The interview transcripts were coded and analyzed via thematic analysis, while the survey data were summarized using descriptive statistics. The results show that caregivers sought information on what changes to expect as dementia progresses. Some desired detailed (limited) information to be better prepared (to worry less). The most common action to address their information needs was searching the Internet. However, those who did this tended to be concerned about the quality of information. Overall, this study sheds light on how much detail Latino caregivers desire in the information they need and the actions they take to obtain this information.

Keywords:  Hispanic Americans; dementia caregiving; information barriers; information needs; qualitative analysis

DOI:  https://doi.org/10.1177/07334648231163430
Clin Shoulder Elb. 2023 Mar;26(1): 25-31

Rotator cuff repair: what questions are patients asking online and where are they getting their answers?

Alexander J Hodakowski, Johnathon R McCormick, Dhanur Damodar, Matthew R Cohn, Kyle D Carey, Nikhil N Verma, Gregory Nicholson, Grant E Garrigues.

  BACKGROUND: This study analyzed questions searched by rotator cuff patients and determined types and quality of websites providing information.METHODS: Three strings related to rotator cuff repair were explored by Google Search. Result pages were collected under the "People also ask" function for frequent questions and associated webpages. Questions were categorized using Rothwell classification and topical subcategorization. Webpages were evaluated by Journal of the American Medical Association (JAMA) benchmark criteria for source quality.
RESULTS: One hundred twenty "People also ask" questions were collected with associated webpages. Using the Rothwell classification of questions, queries were organized into fact (41.7%), value (31.7%), and policy (26.7%). The most common webpage categories were academic (28.3%) and medical practice (27.5%). The most common question subcategories were timeline of recovery (21.7%), indications/ management (21.7%), and pain (18.3%). Average JAMA score for all 120 webpages was 1.50. Journal articles had the highest average JAMA score (3.77), while commercial websites had the lowest JAMA score (0.91). The most commonly suggested question for rotator cuff repair/ surgery was, "Is rotator cuff surgery worth having?," while the most commonly suggested question for rotator cuff repair pain was, "What happens if a rotator cuff is not repaired?"
CONCLUSIONS: The most commonly asked questions pertaining to rotator cuff repair evaluate management options and relate to timeline of recovery and pain management. Most information is provided by medical practice, academic, and medical information websites, which have highly variable reliability. By understanding questions their patients search online, surgeons can tailor preoperative education to patient concerns and improve postoperative outcomes.

Keywords:   Internet; Shoulder; Rotator cuff

DOI:  https://doi.org/10.5397/cise.2022.01235
Adm Policy Ment Health. 2023 Mar 17.

Unpacking Inequities in ADHD Diagnosis: Examining Individual-Level Race/Ethnicity and State-Level Online Information-Seeking Patterns.

Xin Zhao, Timothy Hayes, Adela C Timmons, Wensong Wu, Stacy L Frazier.

  Attention-deficit/hyperactivity disorder (ADHD) is a prevalent, persistent, and costly mental health condition. The internet is an increasingly popular source for information related to ADHD. With a nationally representative sample (2018 NSCH), we aimed to separate individual- and state-level effects to examine inequities in ADHD diagnoses. We extracted state-level relative search volumes using "ADHD," "ADHD treatment," "ADHD medication," and "ADHD therapy" from Google Trends, and sociodemographic and clinical variables from the 2018 National Survey of Children's Health (N = 26,835). We examined state variation in ADHD-related information-seeking and applied multilevel modeling to examine associations among individual-level race/ethnicity, state-level information-seeking patterns, and ADHD diagnoses. Online information seeking related to ADHD varies by state and search term. Individual-level racial/ethnic background and state-level information-seeking patterns were associated with ADHD diagnoses; however, their cross-level interaction was not significant. This study adds to the strong body of evidence documenting geographical variation and diagnostic disparity in mental health and the growing literature on the impact of the digital divide on population health, indicating an urgent need for addressing inequities in mental health care. Increasing public interest in and access to empirically supported online information may increase access to care, especially among people of color.

Keywords:  ADHD; Google trends; Latinx; Racial Inequities; State variation; Youth of color

DOI:  https://doi.org/10.1007/s10488-023-01259-w